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Sassykat Distinguished Member

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Posted: 23 November 2008 01:06 am |
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I read your post in Hisgal's diary. So glad to hear you are feeling better! That's great news. You keep taking good care of yourself!
I hadn't heard of ginger before for when you are sick, that's interesting. I'll have to keep it in mind. Do you think eating ginger bread men would have the same effect?
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soontobeme Distinguished Member

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Posted: 24 November 2008 02:37 am |
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Not sure if they would, but, they sure would bring the comfort of holidays and love and that is always a plus, , or course if you go over board........
Thanks for checking in Sassycat.
I just keep plugging along........so glad that it doesn't feel like the good days are gone, but, they are back again.
Judy
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soontobeme Distinguished Member

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Posted: 1 December 2008 03:27 am |
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Had a flair up of the RA this weekend, Friday and Saturday, not the swelling so much this time, but the aches, I think I will be able to predict snow.....I didn't even want to get up on Saturday. But, I have been told that I will have good days and bad, Sunday wasn't to bad, a little swelling and some aching in my lower back, and feet and ankles............hands only in the morning at least. Well, will weight in tomorrow, hopefully I didn't go to overboard.
Judy
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Hisgal Distinguished Member

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Posted: 26 January 2009 10:03 pm |
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Hey Judy ..............it's been a long time. Are you OK? How's it going?
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soontobeme Distinguished Member

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Posted: 27 January 2009 12:32 am |
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Hi All, Hi His Gal,
Yes, I have been gone for a while now. Sorry, just not up to keeping up on the computer, been really busy and just have time to read the posts, and sometimes I get behind on that and don't even have time for that.
Just to let you know what is going on in my life, My RA is almost under control for the time being, still having some flair ups, but nothing like was before, RA dr is weening me off the prednisone, and I am taking methotrexite for the RA 5 pills 1 time a week. This should hlep my fibromalga also. Sorry the spelling is really bad. At night I take a muscle relaxer so that my muscles don't cramp up at night. My RA is feeling so well that I don't have to take any pain killers during the day, which is great. I am still on a water pill that helps keep my potassium levels up, since for some reason they are so low, and it also keeps the water off me. My cardio dr has released me other than to have blood work done every 6 months to monitor the potassium levels. My blood sugar is still wacky, but that may be because of the prednisone. So hopefully that will straigten out once I am off the prednisone. Otherwise I am feeling pretty good.
My ex-husband the father of my children passed away suddenly right after the new year. He got really sick and bleed out on 12/30/2008, his heart stopped on the way to the hosp, but, they got it going again and had the bleeding stopped until new years eve where he bleed out again and they took him to er surgery worked on him all day of the new year and the day after, but he was bleeding out as fast as they were putting the blood back into him. He ended up being brain dead. This was really hard on my 2 boys, they are the youngest. My ex-husband was only 48 and in very good shape, we all thought. His wife told me that he had really bad ulcers, and chrones disease really bad, and arthritis, which they were treating with prednisone and celebrex (I think), well, from what his wife told me he continued to take his aleve when he was hurting and that caused his ulcer to eat all the way thru his stomach. I don't understand why he wasn't told not to take the aleve, my RA dr, said in no uncertain terms was I to take any NSAIDS while on the predisone or the methotrexite as it will cause you to bleed out quickly from ulcers because it is really rough on the stomach. His wife said that he has had ulcers for their entire marriage which was about 12 years. So my life has been very hectic lately.
I am still working out on the bicycle, I am able to ride it for 8 miles about, and that is for about 18 minutes, I am thinking maybe I am not pushing myself enough, but, I have noticed when I do more it bothers my RA. So for now I will stick with the 18 minuts and 8 miles. I am also walking for 15 minutes at work, the days it is to cold out, I walk the back hallway and also climb one flight of stairs in the walk, that way I am getting 30 minutes of exercise in. My weight is still fluctuating because I am not always eating right, and that is my fault, just because life is hectic doesn't mean that I can't eat healthy.
Well update later with weight. Oh yea we are having a biggest loser competition at work and I have joined it, today was offical weigh in day and we will do this for 12 weeks. We get prizes and entered into drawings for the amount of weight we loose and for meeting our challenges. It hopefully will help me.
Talk with you all later.
Judy
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Hisgal Distinguished Member

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Posted: 27 January 2009 02:04 pm |
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Hi Judy glad to hear things are getting better........improvement is always good!
I was especially thinking of you over New Year's. I got off my ADD during the holidays........and at about 2 weeks, I started having my allergy symptoms kick in again. I was so miserable again..........and I was worried about getting a sinus infection, with all the drainage I had. And I wanted to scratch my eyes out, they were itching so bad. Well, finally after being back on it for 2 weeks now, I am feeling much better.
Will look forward to seeing you back on more regularly, as things improve.   
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Hisgal Distinguished Member

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Posted: 27 May 2009 07:31 pm |
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Hey Judy .....................it's been 4 months since we heard from you. Are you OK?
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soontobeme Distinguished Member

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Posted: 4 November 2009 11:36 pm |
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HI All, I am just a wishy washer weight loser, no, sorry I have been off so long, lots of things going on in my life and have been very busy and very tired. Will try and start posting more and getting back on track.
I am now on Enbrel for my Rheumatoid Arthritis, it has been about 3 1/2 weeks and it can take up to 6 months to start reaping all the benefits, but some of my energy levels have come back up. I am hoping that it makes a difference in my feet and ankles soon, so that I can stand to walk more than 20 feet before I have to sit down.
The weight loss as been a total no go, I am up today to 266lbs, something I said I would never do, I am trying to watch what I eat but, somewhere I keep goofing, so I will have to start weighing and measuring and writing everything down that I eat.
Wish me luck on my next journey into the weight loss this time for the better.
Judy
Last edited on 5 November 2009 12:19 am by soontobeme
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soontobeme Distinguished Member

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Posted: 5 November 2009 12:56 pm |
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Today again I am battling the Asthma, had to have a breathing treatment yesterday and looks like I will have to get one again today, going to try and see the doctor today instead of the walk in clinic. Well, I wanted to try and be healthy in my eating, instead I hardly ate anything yesterday. Had 1 egg poached, a pc of whole wheat toast w/1 tsp of margarine, 1 pc of turkey backon, no lunch and about 3 bites of beef tenderloin, mushrooms and onions and a little wild rice. Today nothing, yet, not breathing makes you not very hungry. Did drink lots of water and sugar free cranberry juice. Will add more later, after I call the dr and work.
Judy
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soontobeme Distinguished Member

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Posted: 6 November 2009 03:30 am |
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Still struggeling with the Asthma seems to be hard to breath, hopefully the predisone will kick in and work better tomorrow. Still not much for eating today, snacked a little drank some milk and water, not sure what is going on, did eat an apple and some mixed canned fruit packed in water, not syrup. Will post more tomorrow.
Judy
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soontobeme Distinguished Member

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Posted: 7 November 2009 05:02 pm |
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Well, didn't post yesterday, still not 100% or even close, seems to be getting worse instead of better. Will try and post later maybe will be feeling better by then.
Judy
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Paula New Member
| Joined: | 2 October 2009 |
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| Posts: | 24 |
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Posted: 7 November 2009 06:21 pm |
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| Hang in there Judy and glad to see you are posting again. :)
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soontobeme Distinguished Member

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Posted: 7 November 2009 07:15 pm |
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| thanks
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soontobeme Distinguished Member

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Posted: 8 November 2009 03:26 am |
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Feeling a little better, today is my birthday, so hubby made dinner. My eats today
Breakfast, sausage gravy and biscuit, 1 cup of skim milk
Lunch, salad of lettuce and tomatoe and 1 tsp of salad dressing, and yes, I use the full fat flavored ones, since I use such a small amount, I want the taste, I hate to drown my salad.
Dinner, 3 oz's of steak (tenderloin), with mushrooms and onions, 1 cup of green beans, and 1/2 cup of creamed corn. 1 rolling rock beer. (we were out of wine)
Snack, shared a 100 calorie smart pop popcorn with hubby and the dreaded coca cola, I really need to quit drinking these, but the hubby did drink some of this also.
Not an awful day, much better than usual and at least I am eating again, and trying to weigh and measure my food.
Did go out and take a walk today in this lovely weather that we had. I think that it reached 65 today here in middle Wisconsin, much warmer than it should be enjoyed the sunshine and warmth. The walk was just what I needed.
Judy 
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Paula New Member
| Joined: | 2 October 2009 |
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| Posts: | 24 |
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Posted: 8 November 2009 01:07 pm |
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| Happy Bday Judy! :) Hope you enjoyed the day and glad to hear you are feeling a bit better.
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soontobeme Distinguished Member

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Posted: 9 November 2009 02:49 pm |
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Back to work today, feeling a little better, only had to hit the inhaler 2 times this morning. Will post later. pseymour, thanks for the birthday wishes.
Judy
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desperategirl New Member
| Joined: | 15 September 2008 |
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| Posts: | 286 |
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Posted: 9 November 2009 06:49 pm |
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Hey,
Thanks for posting in my diary. I did have a little freak-out, but everything you said made sense, and was helpful.
I'm sorry you're feeling rough at the moment. Hope you start feeling a lot better soon.
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soontobeme Distinguished Member

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Posted: 15 November 2009 06:44 pm |
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Here I go again, I keep saying I am going to post everyday and then life gets in the way and I don't get to post, only get to read what is on the site very quickly. Not doing to bad, am trying to eat healthy and small portions, have had a few slip ups, nothing major, just a minature 3 musketeers bar and mini peanut butter cup , 1 of each, 1 on Wed. and 1 on Friday. But, otherwise doing well. I had 2 pcs of turkey bacon, 1 scrambled egg and 1 pc of cinamon toast for breakfast, that had 1 tsp of butter. Will post more later.
Judy
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Hisgal Distinguished Member

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Posted: 16 November 2009 09:40 pm |
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Hi Judy 
Thanks for coming over to check on me, when you came back to CPH. I've been wondering how you were doing. Sounds like it's been tough..........and a lot of meds just to keep you going.
I guess you've read how I've been doing I've been on the Alternate Day Diet for about 1-1/4 years...........and felt so good. 2 weeks off of it, in favor of the one from the Women to Women site which is suppose to also help regulate hormones.........and all my allergy symptoms came back. I didn't realize it right away, but I'm even reacting to dairy products again, which I didn't do on ADD. I keep wondering how you would do on that diet............would your symptoms go away in 2 weeks? I guess I wouldn't believe it, if I hadn't experienced it myself.
Well, keep checking in with us.............I know it helps me keep on track. Especially when I post every single thing that goes in my mouth...........then total up the calories. Accoutability is the key, I think 
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Hisgal Distinguished Member

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Posted: 18 December 2009 05:04 pm |
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Hi Judy
Thanks for stopping by my diary. I've been thinking about you, and wondering how you were doing. I miss my CPH friends, when life gets crazy, and I don't have time to get online and interact. But, I am still thinking of you, and my other friends, wondering how their lives are going. I've got a lot of reports to get done in the next week (before year end), so am hoping I can be online more, and get caught up.
It was hard to tell how much snow we got last week. The town I work in reported 7 inches...........and the next town to the south of where we actually live, reported 13 inches. So, somewhere between the two?? All I know is I couldn't get out of my driveway to get to work, and the sidelight on our living room door, was covered halfway up the door with a snowdrift! But, I am glad we are having a white Christmas 
I feel so disjointed and unorganized this year! I am just going from one Christmas party/celebration to the next.............and getting what I need up to that point. I just don't have enough time to do what I want, much less to relax and enjoy the tree and the Christmas season. That's kind of a downer in itself 
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soontobeme Distinguished Member

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Posted: 28 December 2009 04:59 am |
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I have been really bad about writing in my diary, my RA keeps flaring and I am just extremely tired. I just can't keep living like this, I am trying so hard and everything just keeps beating me down. I know that there are others with worse problems than mine, but, today I feel like mine are more than I should have to deal with and I know that is selfish. But, I can't help feeling this way. It is just really overwhelming today. I am thankful for so much, but, can't understand why I can not get a handle on the weight, RA and diabetes, if it isn't one thing it is something else. AAAARRRGGGG, boy do I sound pitaful. Hopefully tomorrow will be a better day and I won't feel so UUUGGGHHHH. I have been so good about the eating, but, just eating right isn't helping any, I need to exercise, but with the RA flaring, my Rheumatoid Dr, said it is not good for me to exercise, only stretches every day to help keep the muscles limber, once the flare is done, I can start exercising again. I really wish I could afford the Y, but, they have a pool and boy would that help. Well, guess it is time to stop feeling sorry for myself, and go to bed. Tomorrow is another day and maybe it will be better.
Judy
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Hisgal Distinguished Member

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Posted: 29 December 2009 02:36 pm |
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Hi Judy 
Sorry to hear the RA is flaring up again. Maybe it's this time of year??? I'm just feeling #%@&! too! Am going back to the chiro again (3rd time this month) and taking the afternoon off work. I'm just going home to ice and rest! I am so tired of headaches and numbness and pain! We should have a pity party for New Year's, huh?
I am hoping things shape up in the new year.............it's often good to say good-bye to the old. I feel a need to start over! I'm still debating whether to go back on the ADD diet..........I felt so good while eating that way. It doesn't make sense really, but having my allergies disappear was really great! I just wonder how much it threw my hormones off?? Oh well........trial and error I guess, to find out what works.
I hope things are going better for you this week, at least marginally! Sometimes we just have to appreciate feeling a little bit better each day..........instead of hoping for perfect health by morning! I need to appreciate more what I do have...........I don't have to look far, to see someone who has it worse than I do. Not that that always cheers me up............but it gives me a different perspective. It could be worse!
   Here's to a New Year.............and a new us!    
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soontobeme Distinguished Member

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Posted: 30 December 2009 03:11 am |
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Thanks Pat, I know that there are people that have it worse than I do, but, you know what sometimes it is overwhelming and I can't be strong all the time, I am allowing myself to be week and baby myself, it seems to help some. I let the dishes go and my hubby does them or someone else and if they sit the day because I just can't then they sit the day, they will get done eventually. I think it was just the holidays and the fact that I had to go off the enbrel for two weeks when I got the dreaded H1N1 and seasonal flu shot. I think that I will start feeling better soon. Will talk to you all later and will try and start posting more.
Judy
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Hisgal Distinguished Member

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Posted: 30 December 2009 01:47 pm |
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Judy wrote:
I think it was just the holidays and the fact that I had to go off the enbrel for two weeks when I got the dreaded H1N1 and seasonal flu shot. I think that I will start feeling better soon.
Glad to hear there might a reason behind you feeling so lousy right now. I always think that helps my outlook, if I can trace it back to something.
I did take the afternoon off yesterday, after my chiro adjustment. I even wore my neck collar until my shower this morning. Yep, the hubs had to take care of supper and dishes at our house last night. I am moving very carefully this morning...........no sudden or unusual moves (which isn't easy outside with all the ice we have EVERYWHERE!)
Having had the H1N1 this fall.................I think it's good that you got the shot. It's too bad you have to endure the other symptoms, while off the meds, but that flu was a bugger. I've never had a virus lay me out like that.........and I swear I still don't feel like I'm totally back to myself yet. Let's hope you are soon back on the meds, and back to feeling the healing/helping effects of them.
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soontobeme Distinguished Member

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Posted: 30 December 2009 04:56 pm |
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My 17 year old had the H1N1 and he ran a fever for almost 10 days, was just miserable, and it wasn't a low fever he was running a 102 almost the whole time, they said that he had the start of the bacterial pneumonia that you get from the H1N1, as soon as they had him on antibotics his fever dropped and he got better. Thank goodness he lives with his older brother and that his sister could come and take care of him, being on the enbrel blocks my immune system from working and I can get really sick really fast. I have been really lucky, that the people at work that had the H1N1 sat far enough away from me that I wasn't exposed. Well, I am off to work, hope all is better with your neck and back. I got to take the enbrel last night so hopefully it will start working in the next couple of days and not a week or so later, it can take up to a month to feel the effects of it working.
Judy
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Hisgal Distinguished Member

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Posted: 17 November 2010 05:45 pm |
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Hey Judy...........we haven't heard from you for almost a year! Are you OK? Is your health improving any? Kinda worried about you...........can you check in? 
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soontobeme Distinguished Member

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Posted: 19 November 2010 11:58 pm |
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Hi Pat, Sorry, I haven't been on the computer much, mostly working and trying to keep going. The ra isn't much better, the diabetes is full blown even on a strict diet so that doesn't help the ra at all, both cause inflamation and I have basal cell carcinoma on my face and head that is being treated with aldera(a liquid chemo), so I had to go off the enbrel for 6 weeks. So I am really exhausted. I will try and post more often. Thanks for thinking of me.
Judy
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Hisgal Distinguished Member

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Posted: 20 November 2010 04:30 am |
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| Judy, so sorry to hear that! I think I better be adding you to my daily prayers! How long will the liquid chemo last? Is the carcinoma the same places as last time? Or different? And you are still working too? That really can't be easy with the ra and all the other stuff going on! May the Lord wrap his loving arms around you and give you His strength!
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soontobeme Distinguished Member

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Posted: 28 November 2010 04:31 pm |
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HI Pat, The basal cell carcinoma is in different spots than last time, the aldera is now done, the healing has begun. Next week I can start the Enbrel again.
Thanks Judy
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Hisgal Distinguished Member

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Posted: 29 November 2010 01:31 am |
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| Judy........well at least that sounds positive! Keeping you in my prayers too. Check in again and let me know how you are doing! Thanks for taking the time to let me know this time!
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Hisgal Distinguished Member

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Posted: 13 May 2011 01:38 pm |
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Thinking of my cyber friends this week............how are you doing Judy ?
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